background-image: url(img/people.png) .left-column50[ # Week 2: Disability Justice CSE493e, Fall 2023 ] --- name: normal layout: true class: --- # Important Reminder ## This is an important reminder ## Make sure zoom is running and recording!!! --- [//]: # (Outline Slide) # Learning Goals for today - What is Disability Justice - Understand terms about and models for disability-centered design --- # What is Disability Justice Concept developed by Queer, BIPOC disabled people Deeply connected to anti-capitalist politics. - You may not agree, but you should be able to explain the principals anyway. - We are not defining this, we are learning it. --- # Disability Justice Principles 1. INTERSECTIONALITY(*) "we are many things, and they all impact us." [Sins Invalid](https://www.sinsinvalid.org/) disability based performance project defines [10 principles of disability justice](https://static1.squarespace.com/static/5bed3674f8370ad8c02efd9a/t/5f1f0783916d8a179c46126d/1595869064521/10_Principles_of_DJ-2ndEd.pdf) which are: (*) Feminist theorist Kimberlé Crenshaw coined intersectionality in 1989 to describe the experiences of Black women, who experience both racism and sexism. ??? “We do not live single issue lives” –Audre Lorde. Ableism, coupled with white supremacy, supported by capitalism, underscored by hetero-patriarchy, has rendered the vast majority of the world “invalid.” --- # Disability Justice Principles 1. INTERSECTIONALITY "we are many things, and they all impact us." 2. LEADERSHIP OF THOSE MOST IMPACTED helps us stay grounded by those we serve ??? “We are led by those who most know these systems.” –Aurora Levins Morales lifting up, listening to, reading, following, and highlighting the perspectives of those who are most impacted by the systems we fight against." by centering the leadership of those most impacted, we keep ourselves grounded in real-world problems and find creative strategies for resistance. " --- # Disability Justice Principles 1. INTERSECTIONALITY "we are many things, and they all impact us." 2. LEADERSHIP OF THOSE MOST IMPACTED helps us stay grounded by those we serve 3. ANTI-CAPITALIST POLITICS "we resist conforming to 'normative' levels of productivity in a capitalist culture" ??? In an economy that sees land and humans as components of profit, we are anti-capitalist by the nature of having non-conforming body/minds. Capitalism depends on wealth accumulation for some (the white ruling class), at the expense of others... Our worth is not dependent on what and how much we can produce. --- # Disability Justice Principles 4) CROSS-MOVEMENT SOLIDARITY "Through cross-movement solidarity, we create a united front." ??? disability justice lends itself to politics of alliance. Align with racial justice, reproductive justice, queer and trans liberation, prison abolition, environmental justice, anti-police terror, Deaf activism, fat liberation, and more... challenging white disability communities around racism and challenging other movements to confront ableism. -- 5) RECOGNIZING WHOLENESS "Disabled people are whole people." ??? People have inherent worth outside of commodity relations and capitalist notions of productivity. Each person is full of history and life experience. Each person is full of history and life experience. Each person has an internal experience composed of our own thoughts, sensations, emotions, sexual fantasies, perceptions, and quirks. -- 6) SUSTAINABILITY "pace ourselves, individually and collectively" ??? We pace ourselves, individually and collectively, to be sustained long term. Our embodied experiences guide us toward ongoing justice and liberation. to be sustained long-term, value the teachings of our bodies and experiences, and use them as a critical guide and reference point to help us move away from urgency and into a deep, slow, transformative, unstoppable wave of justice and liberation. -- 7) COMMITMENT TO CROSS-DISABILITY SOLIDARITY "isolation undermines collective liberation" ??? even and especially those who are most often left out of political conversations. Break down the isolation between people with physical impairments, people who are sick or chronically ill, psych survivors and people with mental health disabilities, neurodiverse people, people with intellectual or developmental disabilities, Deaf people, Blind people, people with environmental injuries and chemical sensitivities, and all others who experience ableism and isolation that undermines our collective liberation. --- # Disability Justice Principles 8) INTERDEPENDENCE "We work to meet each other's needs" rather than depending on state solutions ??? the liberation of all living systems and the land as integral to the liberation of our own communities, as we all share one planet. We work to meet each other’s needs as we build toward liberation, knowing that state solutions inevitably extend into further control over lives. -- 9) COLLECTIVE ACCESS "We can share responsibility for our access needs ... balance autonomy while being in community" ??? AS brown, black and queer-bodied disabled people we bring flexibility and creative nuance that go beyond able-bodied/minded normativity, to be in community with each other. ... Access needs aren’t shameful — we all function differently depending on context and environment. Access needs can be articulated and met privately, through a collective, or in community, depending upon an individual’s needs, desires, and the capacity of the group. We can share responsibility for our access needs, we can ask that our needs be met without compromising our integrity, we can balance autonomy while being in community, we can be unafraid of our vulnerabilities, knowing our strengths are respected. -- 10) COLLECTIVE LIBERATION No body or mind can be left behind – only moving together can we accomplish the revolution we require. ??? We move together as people with mixed abilities, multiracial, multi-gendered, mixed class, across the sexual spectrum, with a vision that leaves no bodymind behind. --- # Case study: One-way Masking First Person Perspective [FastCompany Article](https://www.fastcompany.com/90790893/im-a-chronically-ill-student-and-one-way-masking-isnt-enough) by a chronically ill Berkeley student who was infected by a stranger who sat down next to them without a mask .quote[I challenge people who are not at high risk for COVID-19 complications to think about what it must be like trying to attend university (or go into work every day) while also trying to avoid getting COVID-19.] .quote[Why wouldn’t people wear a mask to protect “vulnerable” members of our community, who are statistically part of every college campus? Why is it always the disabled or chronically ill student or professor who has to ask people to wear masks? Why can’t people just show solidarity? I ask myself these questions daily.] --- # Case study: One-way Masking - [Masks hide facial expressions & exacerbate racial bias](https://theconversation.com/face-masks-hide-our-facial-expressions-and-can-exacerbate-racial-bias-155250) - Masks make lipreading harder - Individual risk of severe COVID is [lower for vaccinated people with no risk factors](https://www.cdc.gov/coronavirus/2019-ncov/vaccines/vaccine-benefits.html#:~:text=COVID%2D19%20vaccination%20helps%20protect,associated%20with%20COVID%2D19%20infection.) - Political [resistance](https://theconversation.com/mask-wearing-wasnt-disputed-in-previous-crises-so-why-is-it-so-hotly-contested-today-171536) and [beliefs](https://theconversation.com/face-masks-cut-disease-spread-in-the-lab-but-have-less-impact-in-the-community-we-need-to-know-why-147912) - Masks protect the wearer - Masks also protect people around you, if you are sick Discuss masking from a disability justice perspective and [post on Ed](https://edstem.org/us/courses/41400/discussion/3534307) --- # Announcements (1/2) Thanks for your feedback on this week's participation survey - Outdated links: Please keep posting them in Ed; we also have a TA checking links in slides and on the schedule page; and we're tryin to put assignments for everything on Canvas to help reduce errors - Reading question dates: We've added a due date for answering the reading questions starting this week. - Anything else unclear, please tell us. - I forgot to repeat questions! I will do this in the future (please feel free to remind me!) - I've tried to simplify the website navigation - Everyone has two late days on EVERY assignment. --- # Announcements (1/2) - For Friday, you will be assigned a room to present in and a slide (of yours) to present. Each room will also have a zoom link. - Virdi talk -- look for announcement. We have 25 tickets - Any other questions? --- [//]: # (Outline Slide) # Learning Goals for today - What is Disability Justice - **Understand terms about and models for disability-centered design** --- # Some terms used in Accessibility (1/2) .left-column50[ Accommodation-- we've already discussed - Co-producing access for all participants in a space or event - Legally mandated, but also so much more ] .right-column50[ Ability-Based Design - Jacob Wobbrock - Technology that adapts to the abilities of the user in their current context ] --- # Some terms used in Accessibility (2/2) .left-column50[ Universal Design (why is this problematic?) - One design works for everybody - Typical example: curb cuts ] .right-column50[ Disability Justice Informed Design - Design informed by disability justice - What we practice in this class ] --- # Disability Justice Informed Design (1 / 6) The **central philosophy** in this class 1) **Intersectionality**: Ensure that the things we build address multiple disabled people, with varied identities, and multiple disabled people --- # Disability Justice Informed Design (2 / 6) 2) **Leadership of those most impacted**: Disability led decisions, not disability dongles. When we design for people with disabilities, - Ideally people with disabilities are part of the design process (or lead it) - In this class, we emphasize first person accounts to reduce the burden of asking disabled people to teach us while we are still learning --- # Disability Justice Informed Design (3 / 6) 3) **Anti-Capitalist Politics**. When we create systems, we make them accessible even though it may cost time and money - No segregation, even if it is cheaper to implement ??? Consider things like disclosure and invisibility --- # Disability Justice Informed Design (4 / 6) 4) **Cross-Movement Solidarity**. Addressing accessibility isn't enough if we aren't inclusive of other identities --- # Disability Justice Informed Design (5 / 6) 5) **Recognizing Wholeness**. We should include accessibility in all the spaces that people interact with technology, because people with disabilities exist in all of the spaces -- as authors and consumers; programmers and users; and in every area of life -- 6) **Sustainability**. We should work at a pace that includes everyone in the work, and not value the rush products to market over access --- # Disability Justice Informed Design (6 / 6) 7) **Cross-disability Solidarity**: Again, we should support multiply disabled (and multiple disabled) people... 8) **Interdependence**: ... and create designs that encourage people (with and without disabilities) to work together to achieve access... 9) **Collective access**: ... and in the process our designs balance agency and control with interdependence and independence 10) **Collective liberation**: ... and leave no one behind in the process --- background-image: url(img/accessibility/old-phones.jpg) .left-column[ ## .white[Case Study: The iPhone] .white[ MacWorld Keynote '07 ]] ??? Originally neither universal design nor ability-based design Here is an [interview (4:03-4:32) with Liz Jackson](https://www.youtube.com/watch?v=uvgXeCe6n10): iPhone screens are a product of accessible technology created from the ingenuity of a disabled person. --- background-image: url(img/accessibility/jobs-iphone.jpg) .bottom[ .white[The phone Jobs is holding is small, flat, and without any tangible information accessible to a blind person] ] ??? Originally neither universal design nor ability-based design --- .left-column[ ## Sliderule: The first mobile screen reader] .right-column[  ] --- ## Sliderule: The first mobile screen reader ![:youtube Sliderule Video, 496IAx6_xys] --- # Translation to iPhone .column[ .centerh[  ] ] .column[ .centerh[  ] ] .column[ .centerh[  ] ] --- background-image: url(img/accessibility/iphone-now.png) # Accessibility in the iPhone Today .left-column60[ Many pages of accessibility settings - VoiceOver – reads what is on screen - Speech recognition for controlling device - Zoom – screen magnifier – 3 finger tap - Closed captions on videos - AssistiveTouch – fewer fingers needed, etc. - Switch Control (IOS7 and later) [head movement with built in camera](https://www.youtube.com/watch?v=RXF2ThtYXzM) or external switch ] ??? assistive touch also saves you from pressing the home button --- # Analyzing the iPhone from a Disability Justice perspective Which disability justice principals did the original iPhone fail to meet? What about now? Small group discussion; Summarize your discussion on [Ed](https://edstem.org/us/courses/41400/discussion/3534324) --- # Disability Justice Homework Assignment 0. Pick an article 1. Write a 250 word abstract 2. Select, *define* and write about 3 disability justice principals that are positively, or negatively, represented in that article. Also suggest a remedy if relevant. 3. Rewrite the abstract in plain language and add it to your handin. --- # Disability Justice Competencies - Plain language - Disability Justice
